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dc.contributor.authorKamyk-Wawryszuk, Agnieszka
dc.date.accessioned2020-10-12T08:07:25Z
dc.date.available2020-10-12T08:07:25Z
dc.date.issued2020
dc.identifier.isbn978-86-6203-139-6
dc.identifier.urihttp://repozytorium.ukw.edu.pl//handle/item/7239
dc.description.abstractDiagnosing a child with a rare disease that involves acute respiratory distress dramatically changes his/ her educational situation. Therefore, it is important to determine the child’s educational needs which will help select an adequate teaching strategy. One of such diseases is Spinal Muscular Atrophy with Respiratory Distress Type 1 (SMARD1). In Poland, two children were diagnosed with it, whereas around the world there are over 60 cases. The study encompasses one boy with SMARD1. The purpose of the study was to describe the child’s educational needs, as well as to indicate which of them are related to the rare disease and which to respiratory distress that requires mechanical ventilation. Based on the performed study, it was concluded that not all educational needs related to the rare disease were present. On the other hand, all needs related to home ventilation were present.en_US
dc.language.isoenen_US
dc.publisherUniversity of Belgrade – Faculty of Special Education and Rehabilitationen_US
dc.subjectchildren with educational needsen_US
dc.subjectSpinal Muscular Atrophy with Respiratory Distress Type 1en_US
dc.subjectrare diseaseen_US
dc.titleEducational needs of children with rare diseases and long-term home ventilation (SMARD1) - case studyen_US
dc.typeBook chapteren_US


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